My Invisible World by Morasha Winokur
This book is an excellent resource for anyone living with or working in the field of fetal alcohol spectrum disorders or developmental disabilities in general. Morasha’s portrayal of her life with her brother, Iyal, his disability, and his service dog is mature, insightful, and honest. Morasha states in the book that she sometimes worries her brother doesn’t know how much she loves him. It seems she need not worry about this – her decision to educate others about this condition and bring its reality to light is truly inspirational and telling of her love for her brother and her family.
Powerful and Enlightening
Midwest Book Review states "Powerful and enlightening!" An eleven-year-old sister authors a compelling love story to reveal the truth of fetal alcohol spectrum disorders (FASD) and the healing a service dog brings to their family. She welcomes you into her world in middle school language and through a personal scrapbook. She includes a glossary of terms, a spot quiz and additional supportive websites for further learning about the effects and prevention of FASDs for families and professionals.
- Sara Hassler
Brilliant insights! Must Read!
“Words of wisdom from such a little person! I loved this book. My 10 year old son loved it as well. You see, we are a blended family of bios and adopted. Our domestically adopted daughter has FASD and our biological children are challenged with the daily struggle of understanding her moods and behavior. Morasha so amazingly described the paradox of her feelings towards her brother, it couldn’t have been more on target! This book so effectively advocates for our special FASD children that I applaud it and hope that every child who struggles with the challenge of growing intellectually beyond their sibs with FASD reads it and knows that everything they think and feel is normal and welcome in the process of loving their sibling for everything they are and aren’t. ”
– Lori Gertz
“Eleven-year-old Morasha Winokur makes two invisible worlds—the life of a child with special needs and the life of his sibling—come alive. Although specifically written regarding fetal alcohol spectrum disorders (FASD), her well-communicated observations are applicable to other diagnoses. As a result, “My Invisible World” should be recommended reading for all school personnel, pediatric healthcare providers, and health policymakers. Bless Morasha for her quietly emotional, loudly effective improvement of my own vision.”
— Yvonne W. Fry-Johnson, MD, MSCR
“Morasha, you really nailed it. I bet there are a lot of other kids with brothers or sisters they love who are also challenging. I’m so glad I got to know you, Chancer and your whole family and that we got to work together on this book. I love Iyal, he is a great kid with a huge heart. I hope because of your writing, it will make a difference in the lives of many kids. You are a strong young woman and congratulations on taking the risk to tell your story. Much love.”
— Jodee Kulp, award winning author, The Whitest Wall
“OMG I love it!!! Morasha’s words are really powerful and you can feel how she feels!”
— Maddie –11 year old reader
How Fetal Alcohol Spectrum Disorder affects a sister and attacks family life
October 7, 2009
Morasha Rael Winokur rocks. She's authentic. Morasha knows that her brother's constant babbling isn't his fault, but sometimes she just wishes she could be a regular eleven-year-old girl. Not exactly possible, when brother Iyal, born with FASD, is unpredictable and emotional no matter where he is. At times, part of her wishes he would just shut up, while another part says, “But deep inside, I love him so much."
There are plenty of “That's not fair” times for Morasha, but also amazing amounts of family love, insight, and support. And an FASD service dog named Chancer for Iyal. With Chancer, Morasha says, she has a chance for a life of her own.
Read this book and I guarantee you'll never think the same about the outcome of drinking while pregnant. But it's much more. It's an opportunity to meet a delightful family that advocates for children with FASD.
Morasha's book is the “must have” of the 2009 holiday season and the coming year. A perfect gift, regardless of whether the reader has family or friends with special needs.
Honest and sensitive, growing up with a sibling with Fetal Alcohol Spectrum Disorder
October 4, 2009
An honest and sensitive assessment of life for the sibling of a special needs child. Eleven year-old Morasha puts into words the burdens faced growing up with a brother affected by Fetal Alcohol Spectrum Disorder (FASD). The reader learns how the whole family embraces the challenges of living with an FASD child and finds support in a specially trained service dog, named Chancer. This book provides insight, and is an appropriate read, for any parent or sibling of a of special needs child - not limited to only FASD affected families.
— J. Michael Williams
Well spoken, heartfelt and a story to be shared!
October 2, 2009
Morasha has written a difficult and heartfelt story about her life and the affects of her brother's illness on her and her family. She shares her feelings very openly and candidly. This is a great book to share with others, especially children. This book should be in every elementary and middle school library in the county. Morasha tells it like it is!
—Richard A. Liebman
Inspiring and Poised
September 22, 2009
Heartfelt voice of a young sister’s love and her own internal struggle of acceptance with her sibling’s disability. Wonderful read for inspiring authors, siblings and parents. Wish elementary schools would use this book for their student's curriculum and writer’s workshops. There are so many lessons embedded in this 11 year old Morasha's story: embracing diversity, empathy, self-acceptance, siblings, growing up, being an agent of change, and the importance of prevention. My son read it to me as his homework, but the lessons have only begun to start to take root.
— Gailynn Gluth
A must read for parents and children alike!
September 10, 2009
I found the message and deliverance of this book so powerful and heartfelt. The unconditional sibling love and respect displayed by this young lady reminds us that love truly has no boundaries. Whether you are learning to cope with a disability in your own family, or simply interested in reading a great book that shows immeasurable strength and courage, this is a must read! Great for children and parents, alike.
— Melissa Lacquement