Quality resources make a difference in helping the person you are or the person you love. Find information below with resources on: fetal alcohol exposure, Behavioral Assistance Dogs, fostering families, adoption, and developmental disabilities. As our journey with Chancer and now Quinn has continued we have met incredible individuals and discovered organizations who are constantly advocating and developing strategies to make a difference.
Our Favorite Resources
Canine and working with FASD
PawZup.net – Expanding Mindz with Canines Program (Click to download brochure) – Jodee Kulp
Training program for teens and adults with neurodiversity to access, build and increase executive function skills. Sensitive to issues and challenges of living with FASD.- 4 Paws for Ability – Chancer and Quinn were trained there
The agency enriches the lives of children with disabilities by training and placing quality, task-trained service dogs. Chancer was the first dog trained for someone who lives with FASDs, mental health challenges and cognitive impairment.
Websites
Parents of persons who live with FASD who understand everyday living!
- BetterEndings.org – LiveAbilities strategies for families to
- RealMindz.com – International site that brings together thoughtful parenting techniques for persons with neurodiversity. This consortium supports the internet Red Shoes Rock Campaign Project
- Realpeople.Realmindz.com – 90 individuals living with FASD tell their stories
- Realfamilies.Realmindz.com – families share their stories and dreams for the individuals they love living with FASD
- Parenting Complex Children – by Ann Yurcek
This site is filled with ideas to help caregivers and professionals. Ann also blogs at Mackie’s World and Keeping Up with the Tiny Titan - FASD – Learning with Hope – by SB and MB from UK
One families journey - Our Sacred Breathe – by Yvonne Williams from Canada
Excellent blog filled with links and statistics – dig through the Red Shoes Rock Campaign info
Professionals skilled in working with persons living with FASD
- OregonBehavior.com – Nate Sheets
Provides You Tube videos to help you understand this complex disability - Resilency for Life – Michael Ballard
Helps people discover key skills that will assist them make a significant difference in their lives. - Advancement of Forensic Studies – Jerrod Brown
Working towards making a difference for individuals with FASD in the judicial system
Schools dedicated to working with students who have FASD
- CanLearn Academy – Spokane, Washington
- David Livingston School – Winnepeg, Canada
Organization Links
- FASD United, formally National Organization on Fetal Alcohol Syndrome (NOFAS)
FASD United is the leading voice and resource of the FASD community. Founded in 1990, FASD United is the only international nonprofit organization committed solely to FASD primary prevention, advocacy, and support. - MOFAS – Minnesota Organization on Fetal Alcohol Syndrome
MOFAS has a wide variety of resources on Fetal Alcohol Spectrum Disorders ( FASD) available to you. - American Academy of Pediatrics – FASD toolkit
Educational Links
- Families Moving Forward Program — University of Washington
The Families Moving Forward (FMF) Program helps children with fetal alcohol spectrum disorders (FASDs), their families, and the professionals who care for them. - Do2Learn
Educational strategies that may make a difference for persons living with FASDs.
Government Links
- Center for Disease Control – FASD (CDC)
The mission of the CDC’s National Center on Birth Defects and Developmental Disabilities is to promote the health of babies, children, and adults and enhance the potential for full, productive living by working to identify the causes of birth defects and developmental disabilities; help children to develop and reach their full potential; and promote the health and well-being among people of all ages with disabilities, including blood disorders. The center’s Fetal Alcohol Syndrome Prevention Team works to prevent FASDs and to ameliorate these conditions for individuals and families already living with FASDs.
- National Institute on Alcohol Abuse and Alcoholism (NIAAA)
The NIAAA is one of the 27 institutes and centers that comprise the National Institutes of Health (NIH). The NIAAA supports and conducts research on the impact of alcohol use on human health and well-being. It is the largest funder of alcohol research in the world. - SAMHSA FASD Center for Excellence (though no longer funded this will take you to resources they original project produced)
The SAMHSA FASD Center was a federal initiative devoted to preventing and treating FASDs.
Other Disability Resources That May Help The Person You Love
- Cerebral Palsy – learning about treatment options and how to help manage the disorder, your child can still live a productive life.
- Diabetes – understanding from the inside out – wish we had known about these sites in the beginning
- Diabetes Everyday – from a woman who has lived with Type 1 Diabetes for 50 years
- Diatribe Foundation – using your bright spots to build balance
- Diabetic Service Dogs of America – an explanation of the work these service dogs provide with their ability to alert prior to a dangerous diabetic episode and creating a better quality of life for their human partner.